We created this blog to help and educate others about the birth defect called Congenital Diaphragmatic Hernia.
Here are couple of web sites that I felt to be very informative. I hope they help.
This our story:
We were getting excited planning for a baby, buying baby clothes and getting ready for a baby shower, it was going to be so much fun, right? Until that day I went to the hospital for my 5 month ultrasound. I should of known something was up when the tech started acting weird and saying "I have to check with my manager if I did this right" and she then left the room. We did find out that we were going to have a boy. Although she wouldn't say if he was healthy when we asked, she just played word games. We didn't think nothing of it at the time, we just assumed everything was ok. Then a couple days later I had my doctor check up and my OB/GYN told me my unborn child had some sort of problem. She wasn't even quite sure what CDH was, she had to look it up in one of her medical books. Anyhow she referred us to a doctor about 1/2 an hour away. He specializes in high risk pregnancies. We met with him, and they did their own ultrasounds and figured that the baby would have to be placed on an ecmo machine so they got us set up with a doctor who is 4 hours away. We had shared visits between those two doctors. When it came time for me to have the baby, they had the delivery all planned out. I was induced and after he was born they took him into an adjacent room started giving him oxygen help him breath. I got to see him for a few minutes, and he had to be taken to the children's hospital. I went to the hospital and seen him the next day. They had him hooked up to the ecmo machine already. He had surgery to repair his diaphragm when he was two days old. The doctor that did the surgery said things were a lot worse then what they thought. Things pretty much went down hill from there, They moved him from picu (they had him there for the ecmo machine) to nicu and then they put him on a ventilator. I remember his little chest was just beating so hard. A day later we got a call, that he wasn't doing to good and may not make it through the night, so we went and seen him. After his 2 week struggle, he went home to be with the Lord. It was a very difficult time but with help of our family and God we are healed.
I don't want anyone to feel sorry for me, because I don't. I believe he is in Heaven and I know I will see him again.
Although our son passed away, rest assure there are some babies that do survive.
If your child has CDH I wish you all the best!
